A Public Affair

"Do you want us to call you an ambulance?" "No, I'll be fine"

Voila, my triumphant return to the blog. 

I've been getting acquainted with my

I've as someone who isnt constantly in the hospital. However, now that I feel better, I've come down with a pretty bad case of delayed adolescent invincibility. Yup, I think that nothing will affect me and last weekend, I was very abruptly humbled out of this attitude. 

Now about a month into the university term, the germs are out. I'm sure the students that travel from afar are actually just walking incubuses of viral plague, plague that I have no immunity against. This is evident in the fact that I already caught some sort of cold like sickness that feels more like death warmed up. I blame the big city Petrie dish students who dragged in the foreign germs that have destroyed my ignorant bliss 

Late Saturday night I started to feel unwell, only to wake up on Sunday feeling as bough I had been hit by a truck full of blizzards and congestion. Despite my fatigue, I journeyed to the grocery store to fetch my creature comforts oF soup and honey (not together). As I was aimlessly wandering the aisles, overwhelmed by the fast pace of the store I felt progressively unwell, and I wanted to get, out. 

I made my way to the checkout and pulled out my card to pay, and I felt it. It was happening. As soon as I recognized the feeling, I knew I was already past the point of no return. "I'm going to faint" I said matter of factly to the unfortunate cashier I chose to purchase from. "What?" She said, but before she had even had time to compute what was going on, it was over.

I'm not great at fainting subtly, quietly, privately, or gracefully. No. It's always a public affair. Where everyone can see. So there I was, I woke up and I was lying on the grocery store floor, everyone staring. The cashier's supervisor was standing over me and asked "do you want us to call an ambulance?" "No I'll be fine"  (my standardized answer). The last thing I wanted was for paramedics to come, learn my medical history, and drag me to the ER for a long wait and multiple needle pokes. 

After a few minutes I attempted to sit up but was racked with dizziness once again. I rolled my eyes. This was NOT how I pictured my trip to the store going. And then the paramedics came in. Yup. They called them anyway, and they carted me off to the ER. After a short stay of only 3 hours in the ER, an EKG, about 500ml of IV fluid and an extra dose of Cortef, I was on my way.

And behind on my studying.

Losing the Light

"No. I won't do it. Nope. You think you can get me on there. You can't"

In my last post, I casually mentioned that my low blood pressure caused me to faint a couple of times last summer.

Even though it was pretty dangerous and not at all good for me, one of the situations is kind of funny when I look back on it.

Thank god I have the ability to see humour in my life....

I totally am not this poised when I faint.

 So here is the story of me fainting in a hospital. 

Last summer as part of my over achieving lifestyle, I was volunteering at my local children's hospital as a research assistant in the pain research lab (ironic I know). 

On this particular day I hadn't been feeling well to begin with, but like the trooper I am I put on my dress and heels and went in anyway. 

I was with another member of the lab down in the I.T. department, trying to get my hospital email account set up when it started to hit me. At first I just felt a little weak, so I thought I would be ok as long as I got to sit down relatively soon. 

I didn't. The lady working in the I.T. department was quite the chatterbox and kept talking...

My head started to swim Oh god. I thought. This is it. This is it. This is the end!  

I felt sick to my stomach and crouched down on the floor, luckily my co-researcher saw that I was less than feeling well and got me a chair. 

After I sat down I deteriorated, I got really dizzy, I was sweaty, shaky, the typical symptoms of being about to faint.  

Then, they called a Code Blue. In our hospitals this means cardiac arrest. It's what they call when someone goes unconscious. I wasn't fully out, but I was about a hair away from it.

Doctors came barreling in with a crash cart and started bombarding me with questions. When you're about to pass out, it's hard to answer questions about your medical history. 

They asked me if I was diabetic, and I couldn't answer, all I could think about was how my ex-boyfriend was diabetic and how I hated him. Nice Jack. 

Finally, I managed to eek out that I had Crohn's, and I think things started to make sense to the crash cart team. They kept taking care of me, and finally brought me back to a full conscious state. Then they asked me how old I was. I was 18. Too old for the children's hospital!

It's not my fault. I'm kind of small, I'm only 5'2 (on a good day), I have a small frame (I'm a lady, I'm not sharing my weight) and I have a baby face. So they had assumed I was a child patient...WOOOOW.

So next they called me an ambulance to bring me to the adult hospital. I was unaware they did this until the paramedics showed up. Rather than being grateful and concerned for my health, I had a .... different reaction to this. 

Ambulances are expensive, my Oma has had to take a couple and it's been a lot to pay for.

My initial reaction was complete and utter refusal. I was borderline rude to them. "I'm not getting in. You can't make me. I'm fine. I'm not getting in there. I'm not going. I'll walk. No. I'm not getting on that ambulance" 

Truthfully, I was a little kooky from almost passing out, and wasn't thinking very clearly....

They ended up having to call my mother who forced me to get in the ambulance after I almost passed out again while arguing with the paramedics. 

I got to the ER of the adult hospital and dealt with it all, but when looking back, I must have seemed like a total nutcase to the paramedics. 

I hope I'm not the only one who has had crazy experiences like this. 

To the paramedics....I'm sorry. 

Other Than My Guts...

"You need to eat more salt" "What?" "You need more sodium, just drinking water isn't going to solve anything"

So, welcome to my life of many complexities. That's the delicate way of putting all the poopy secondary problems my Crohn's causes.

I've been over the initial disease symptoms and stuff before here, I'm pretty sure it's clear. If not, check out the post that I did on them here. 

But this post gets into all of the OTHER delicious complications my Crohn's has so graciously bestowed upon me. Let us delve into it, shall we?

1. Eye Problems

Thank god I'm not this bad.

•  Crohn's legitimately causes it, so I had a hard time debating whether or not to even put it in this post, but alas, here it is. 
• I've experienced episcleritis. That's essentially inflammation of the white part of the eyes. 
• What do they treat it with? Prednisone and ibuprofen eye drops. All I could do was laugh at this. Yet again, I met the bane of my existence  prednisone. Luckily no side effects were experienced from the drops. 
• The worst part: my eyesight changed. I went from having better than 20/20 vision to having astigmatism. I got glasses. Big whoop, I'm over it. 

2. Blood Pressure Problems

Just like me, fainting away.

• I'm pretty awesome, I've got low blood pressure. Ok, not so awesome, it's a bit too low. So low that last summer I ran into a bit of a problem with fainting. ....in public.....alone. My pressure would drop, and I would faint. 
• THAT WAS A PROBLEM MUAH HA HA. In all seriousness, it wasn't good.
• What do they treat it with? Salt and watah. The salt makes you retain the fluid, and the water is the fluid you retain. This increases your blood volume and keeps your blood pressure up, ergo, no fainting. Yaaaay!
• The worst part: fainting. Duh. 

3.  Low Nutrition

Disgusting.

• I eat healthy. I try to eat a variety. But when your gut is inflamed it's really hard to absorb all the nutrients you need, so as a result, my nutrition is out of whack. I have low magnesium, low calcium, low vitamin B12, low vitamin D, low blood protein, low potassium, and who knows what else. I snuck a look at my bloodwork when my nurse left the room last week and let me put it this way, there wasn't much in the "normal" range.
• What do they treat it with? Gatorade for low potassium, protein shakes for low protein, supplements for magnesium and vitamin D, B12 shots, chewable calcium, and a chewable multivitamin to try and cover my bases. There's hardly room for food in there...
• The worst part: protein shakes. Those things are NASTY. 

4. Hair Loss

A sheer veil...

• Whether it's from treatments (low grade chemo), or lack of nutrition I've noticed pretty substantial hairloss since I was 15. My hair is strong and healthy, just fine to begin with and now it's thin. IT doesn't fall out in clumps and I'm not bald, but I do have some, less than hairy spots on my scalp. I don't have a thick curtain of luscious locks, but rather a sheer veil of satin threads. I work with what I have.
• What do they treat it with? Nothing, this really isn't at the top of my priority list right now.
• The worst part: it just doesn't look nice. 

5. Recurrent Yeast Infections

• I know many of you reading this saw that in red capitals and had a mini panic attack. But really, I'm blogging about having a disease that gives you violent diarrhea, I'm not too embarrassed or too good to talk about yeast infections. 
• I get them pretty much every time I go back on steroids or a new immunosuppressant, which totally makes sense because your immune system is knocked down, your natural yeast goes a little crazy for a while. It happens. I've had them in my vagina, duh, but i've also had them on my skin, because EVERYONE has yeast, living ALL over their body. Go figure, and get over it. 
• What do they treat it with? I just use the not brand name version of mono stat 3 day suppository pills, or for my skin, treat it with Loprox lotion. 
• The worst part: The fact that you're going to the bathroom so much already just means you're extra sore when you wipe. I suggest investing in some Charmin Ultra. 

These are the things that have really affected me physically from Crohn's without being Crohn's. 

What else do you guys deal with?